(This post was intended for Oct. 1 but internet interruption prevented posting)
“Life is not about waiting on the storm passing. Life is about learning to dance in the rain.” -Quote on a block of the international Parkinson’s Quilt Project.
The word of the day today at the World Parkinson’s Congress? Team. This word has long ago become cliché, in sports and business especially. But a patient-centered team approach to caring for people with Parkinson’s is vital to maximizing the quality and dignity of life for patients.
Today we heard presentations from doctors as well as speech, physical and occupational therapists, all of whom emphasized the need for Parkinson’s patients to be the leader of their treatment and care team. The team isn’t limited to medical care; families, friends and communities are just as important, many times more so, to helping our loved ones fight Parkinson’s. This team is what empowers patient and speaker Peter Davison to say “I have Parkinson’s. Parkinson’s doesn’t have me.”
Only with a team centered around their treatment and care can people with Parkinson’s “dance in the rain.”